Mon, September 1, 2014
My husband, Dan, and I were thrust into the world of bereavement on a warm sunny day in July 1985. Little did we know how that traumatic experience was going to change our lives forever.
Fri, August 1, 2014
The shock, numbness, tears, and sorrow all seem to come with a rare disease diagnosis. The question of “Why Us?” seems to follow as families try to grasp the realities.
Sun, June 1, 2014
Fatty Oxidation Disorders (FODs)1 can be very challenging for families and affected children and adults (FODers). Personally, I know I have lost sleep over it and gained a few gray hairs! Being an F